Avery's Bucket List: Parents pen blog for baby dying of spinal muscular atrophy
Mon, 30 Apr 2012 07:31:47 -0700 Diagnosed with spinal muscular atrophy type 1, Avery Canahuati was told she has only 13 months left to live http://www.cbsnews.com/8301-504763_162-57424030-10391704/averys-bucket-list-parents-pen-blog-for-baby-dying-of-spinal-muscular-atrophy/
Spinal Muscular Atrophy: Avery's Bucket List Blog Raises Awareness Of The Disease, But What Is It?
Sat, 28 Apr 2012 13:24:50 -0700 A newborn baby's battle with spinal muscular atrophy inspired her parents to start a bucket list blog. HULIQ reports on Avery's Bucket List blog, a site that aims to spread awareness of Avery's illness, which progressively weakens muscle function. http://www.huffingtonpost.com/2012/04/28/spinal-muscular-atrophy-averys-bucket-list_n_1461621.html
Repligen Reports Positive Results From Phase 1 Clinical Trial for Spinal Muscular Atrophy (SMA)
Wed, 25 Apr 2012 07:36:43 -0700 ELK GROVE VILLAGE, Ill. — Repligen Corporation today announced positive results from a Phase 1 study to evaluate the pharmacokinetic (PK) and safety profile of RG3039, a novel small molecule drug candidate … http://finance.yahoo.com/news/repligen-reports-positive-results-phase-143643559.html